What's your strangest migraine symptom?
The less obvious symptoms associated with migraine often get overlooked - difficulty communicating, excessive yawning, smelling things that aren't there, and even distortion of body image and perspective.
What have your strangest migraine symptoms been? When did you realize they were linked to your attacks?
The hemiplegic ones are the strangest. Twitching, numbness, brain fog, feeling really generally out of it like I'm not fully here.
Other than that, the thing that took me the longest to figure out was actually my strange aura symptoms. Auras for me include panic attacks I can't get out of and just a feeling of absolute terror.
I collapse quire a lot.?
When ii do i can hear everything around me.?
And cant resond.?.
Another thing i found latly is i can actually go into a sleep standind up..?
But the worest thing about that is? If im near near a table or a wall, i have started banging my head against them in frustration.?
That sounds really difficult and scary. Have you talked to your medical team about this? It might also be worth having a sleep study to check for sleep disorders, if you haven't already. What do you think? -Melissa, team member
My strangest symptom occurs while I have no headache. Occasionally I get an electric shock that feels like the top of my head is going to blow off. It really sets me back on my heels if standing up. Immediately after the shock it feels like my hair is standing on end, but it is not. Headache specialist doctor could only say " well that is a strange symptom ". Boy, that's helpful.
, yikes! An electric shock that feels like your head is going to blow off sounds incredibly painful and jarring. I wish your headache specialist could've been more helpful. I know you mention this happening NOT during a migraine, but does this happen beforehand? After? Does it seem related to when you might have a headache or migraine?
I'm trying to do a dive into some of our articles where people might mention an "electric shock" feeling and one of them wrote about going off a medication, https://migraine.com/blog/the-time-withdrawal (although you didn't mention medication so I'm not sure whether or not this is applicable to you). Also, another community member asked about a shock sensation in the head, https://migraine.com/forums/shooting-burning-pains-in-head (but I'm not sure whether or not this is during migraine).
You mention a headache specialist, is this specifically a neurologist? I'm wondering if perhaps a neurologist would have more ideas or information to help you figure out what's causing that sensation.
-- Warmly, Christine (Team Member)
Yes i get this all.?
The electric shocks can be so bad? It nearly had me crying @. The Age of 60.? At the time.?
But I have suffered this for a long time along with my Headaches. You are holding your head because of the servere pain, and then with the shocks.?
I'll pee a lot. I run to the bathroom 4 or 5 times an hour.
Me too!
I also have to pee a lot, like 5 to six times during an attack.
The auras that present as smells... The burning wood, cooking fish, burning plastic,.. are all smells that could be real but never are... And cause cognitive dissonance for the duration of the phase. Fortunately I live with people who assure me when they're not real and to wait the sensation out untill it passes.
I smell burning toast or burning wires. Not every migraine but it still sends me looking just in case something is burning. 🧐 we hear you! It can be disconcerting not to know if the smell is because of an impending migraine or because something actually is burning. It's good that you check every time, just in case! -- Warmly, Christine (Team Member)
