Reflections on a Decade of Advocacy

For the past ten years, I have been privileged to be a writer and advocate for the migraine community, sharing my journey and amplifying the voices of others on Migraine.com. Looking back, I am struck by how much has changed—both in terms of available treatments and in the way we, as a community, have come together to fight for better care, awareness, and support.

How migraine treatments have changed

When I began my advocacy work, treatment options were extremely limited. In 2015, most migraine treatments were repurposed from other conditions, often with mixed results and significant side effects. Preventative options were few, and acute treatments often left patients struggling with inefficacy or rebound headaches. However, in the past decade, we have seen an incredible shift. The development of CGRP inhibitors has transformed migraine treatment, providing targeted relief for many who previously had little hope. Neuromodulation devices have also emerged, offering non-pharmaceutical alternatives. The landscape has changed in ways I never imagined, and while there is still much work to be done, I feel hopeful about the future. Also, I personally have benefitted from some of these new treatments!

Participating in policy advocacy

One of the most impactful aspects of my advocacy has been my involvement with Headache on the Hill. For the past four years, I have had the honor of participating in this annual event, where patients, caregivers, and healthcare professionals meet with lawmakers to advocate for migraine and headache research funding, improved access to care, and better policies for those living with headache disorders. Each year, I am inspired by the passion and dedication of my fellow advocates. These conversations are not always easy, but they are essential. Progress may be slow, but it is happening, and I am proud to be part of this movement.

Advocacy through storytelling

Beyond policy advocacy, I found deep fulfillment in my work with Miles for Migraine. Volunteering with this organization has allowed me to connect with others who truly understand the challenges of living with migraine. One of my most meaningful contributions has been compiling "Dear Migraine," a book that brings together personal reflections and artwork created by those affected by migraine. This project was a labor of love, not only because it raises funds for Miles for Migraine but also because it provides a space for people to share their struggles, triumphs, and reflections on living with this condition. The power of storytelling is immense, and I hope this book helps others feel seen and validated.

Learning from other experiences

Through my work on Migraine.com, I have had the privilege of learning from the community. Every story, comment, and shared experience has deepened my understanding of the many ways migraine impacts people's lives. It has reinforced the importance of advocating, not just for better treatments, but also for increased awareness, workplace protections, and improved quality of life. The stigma surrounding migraine remains a significant barrier, but by continuing to speak out, we are chipping away at misconceptions and creating change.

Where does that leave us?

As I reflect on this journey, I know that the fight is far from over. There are still too many people suffering in silence, struggling to access care, or feeling dismissed by those who do not understand the true burden of migraine. But I also know that we have made incredible progress, and I believe in a brighter future for those living with this disease. I will never stop advocating because no one with migraine should have to fight alone.